This blog is very niche : it is specifically for people with Parkinson’s.
I promised to write about ‘difficult to talk about things’. So here goes …. night time is particularly difficult. It is an area people don’t really talk about.
PD is 24 hours a day, it does not sleep, and I need sleep.
Meds are low in the night, so it is important that everything is organised …
A few top tips ….
- Lightweight (in weight) duvet (difficult to move a heavy duvet when meds are low)
- Slidey fitted sheet on bed, which means it is easier to get out of bed. Try sliding on something slidey, and then try sliding on something UN-slidey. Available mail order from older people’s catalogues (true).
- Metal grab rail – not sure of the technical term, but it has long prongs which slide under mattress to secure it, and then I have a small grab rail at the side of the bed.
- Meds and water next to bed
- Spare medication and spare water.
- Phone charged in room.
- Torch to see meds in night – to check am taking correct ones.
- Washing up bowl under bed (not for washing up in). In case I am caught ‘Williamson*’ in the night. (Explanation probably required :*Williamson refers to Jennifer Williamson at number 24 who is ‘short’. Why did I not use a famous ‘short’ person, well don’t want them to be cross when they realise what their name is being used in place of the word ‘short’)
** Okay for transparency and as I promised to write about things which are difficult to write about I will re write this point – in capitals (aka shouting) … to show how unembarrassed I am …
BOWL UNDER BED JUST IN CASE, I AM CAUGHT SHORT, AKA I NEED TO GO TO THE LOO, AND IT IS TOO DIFFICULT TO WALK TO THE TOILET (phew, that was easier to type than I thought)
All of these top tips make for a slightly easier night.
Sleep well ….