Parkinality

Parkinality is a predominantly positive website about living with early onset Parkinson’s, I was diagnosed at 44.

Parkinality : Pa:kin-al-i-tee … Parkin(son’s) Person (ality)

Beginning with a made up word may not be the most straightforward start, but bear with me.  As this is not a ‘Who Dunnit’, I don’t expect you to read for 900 pages trying to unravel the purpose of my ramblings.  So I’d better start with an explanation.

Parkinality (pa:kin-al-i-tee)

  • Parkin(son’s) (person)ality  : two words ‘blended’ together. 
  • Parkinson’s + Personality = although I am not just Parkinson’s it has unavoidably become part of me.
  • I was diagnosed with early onset Parkinson’s Disease at 44
  • I try to be positive and pro-active celebrating what I can do.
  • *predominantly : I am predominantly positive, however I make no apologies for being honest when things are bad.

Why am I putting my head above the parapet and writing :

  • To raise awareness about early onset Parkinson’s
  • To let others living with Parkinson’s know they are not alone, dealing with seemingly random symptoms.  It can be very isolating.
  • Sharing tips and coping strategies.
  • To keep a journal, as I believe it will help me (and as soon as it doesn’t I will stop).

Is it going to be sad?

  • No (well mostly no, after all it is a (currently) incurable degenerative neurological condition).

We have new improved zones … Parkinality, the blog was started January 2017.  It is now joined by two other zones :

My Positive Parkinality The Blog

The Parkinality Poet

The Newspaper Column

Watch this space by subscribing …. tis free and you can unsubscribe at any time.  Subscription zone can be found under the main menu.

If this is your first visit then to avoid bafflement, may I be so bold as to suggest that you read the sections entitled, diagnosis day, disclaimer, support, what is PD, congratulations.

The most up to date posts can be found under the individiual titles of Blog, Newspaper, and Poetry.

The archived section, is in date order and lists all of the posts from the three sections together.

So if you are on a mobile, click on the menu list, usually three lines at the top of the page by the heading.  Or on a pc then the menu should be on the left.

Small print :

This is a personal website about living with early onset Parkinson’s from my perspective.  Everyone experiences symptoms/progression differently.  There is no right or wrong way to deal with this.  I am (obviously) not medically trained, so please don’t change any medications, or try anything new, without first speaking to a medical professional.

This site is under construction, we have our ‘decorating trousers’ on and we (the royal ‘we’ – in this case the ‘we’ is the extremely patient tech guy), are gradually updating the site…. so please ‘bear with …’