Futile = pointless
Humour = well I’ve forgotten what that means
Sorry really can’t think of anything positive to say. Actually that is a fib … probably about six (yes about SIX WHOLE SIXES) times a day I am tip topish. That is when each time equals about 10 minutes. Maybe a bit of foot buzz, or arm tremor, but almost totally tip topish … then I am invincible a million miles an hour woman … cleaning multi tasking the lot positive happy whooppeeeeddddoooodah
But the rest of the time is crap, the other 2,456 times a day I am awful … the rest of the time I either have Dyskenesia, Bradykenesia, Freezing, Dystonia, Tremor, Constipation, etcetera etcetera. And this has nothing to do with Disco dancing with Brad in the freezer (see futile attempt at humour). Sometimes these symptoms are blindingly obvious, sometimes they are hidden up meh jumper, out of sight, but definitely not out of mind.
So at the briefly occasional, and oh so frustratingly short, times I am switched on – ‘why am I having a brain op?’
At the million times I am switched off – give it to me now … get the drill matron.
Had my hair done proper short apparently ‘I look 20 years younger’ so that will be four years old then … again I refer to ‘futile attempt at humour’.
So an ode I wrote recently – depressing alert.
I THINK I DO ODE
The future flashes … fluctuating
We glimpse the future, we know the past
When did the world start to move so fast?
We know the past, we reminisce
We hanker after the good times
We can never regain
We must never regret
But should we forget?
If we forget, we will never remember
How it was before PD
If we forget, we will never remember
How it was before this ‘thing’ took over me
If we forget, we will never remember
How it was before PD
The good times
How it was when I used to be ‘me’
Thoughts overwhelm
Thoughts engulf
We remember the good times
We forget the bad
We forget the times, I thought I was going mad
Rose tinted spectacles
Blackened and dark
Seeing the past
When did the world start to move so fast?
We compare, we contrast
When did the world start to move so fast?
Now is constant, now is real
Can’t you see?
Now is me
We hope
We pray
That today is a good day
We glimpse the future
The unwritten truth
The path to nowhere
No one knows
But I think I do
