2. The Morning After …

Before I begin I need to remind you that this is a personal blog.  There is no right or wrong way to deal with this diagnosis.  The condition, symptoms and feelings are very individual.

Firstly, my apologies for going back on a promise.  I said it wasn’t a ‘Who Dunnit’ and there I was leaving you with a cliffhanger.  I remind you of the last six words of the ‘diagnosis day’ blog, describing how my outlook has changed since diagnosis.

‘… in some ways for the better’.

I may have left you wondering how on earth my outlook on life could be anything but negative, after being diagnosed with an incurable degenerative neurological condition.

I promised to be honest, so it would be very wrong if I didn’t mention the feelings, including shock, fear, anger and frustration, which have ebbed and flowed since D Day.  However, I am not going to dwell on these at the moment.  As promised, I am looking for the positives in a diagnosis which could very quickly drag me down.

So since my diagnosis, I now more than ever :

  • Appreciate how wonderful and complex the human body is.
  • Appreciate the times when my brain and body are working together as a team.
  • Live in the moment.
  • Appreciate the kindness of strangers.
  • Appreciate wonderful friends – old and new.
  • Try new things today, rather than putting them off.
  • Challenge myself and push myself to keep going.
  • Look for the positives.

I have a Neurologist and PD Nurse who are really supportive and direct me to more support when needed.  The best piece of advice I was given in the few weeks after diagnosis was:

  • ‘I am not ill, I have a condition which needs to be managed’

In other words, I see the medical professionals a couple of times a year and the rest of the time I am Caretaker Manager of my PD.  If only it was as straight forward as the offside rule (which, in case you wondered, I do know).  In the same way that the symptoms take over every part of every day, managing the condition is a full time job.  Not only with medication, but also, exercise, diet, hydration, sleep and many more whilst all the time trying to remain positive.

In this blog I plan to share the ways I have found to manage this ever changing condition.   Although I am positive, this blog may sometimes be difficult to write and read as PD tests me on a daily basis.

PS : not everyone has access to a Parkinson’s Nurse.  So if you ever get asked if we want more PD Nurses, please say ‘yes’ and tick that box – thanking you.

PPS : I have had lots of good feedback from people reading the first couple of pages of my blog.  However, several younger people have said that the blog is ‘sick’.  I hope that I am able to dispel this thought by referring to the quote above ‘I am not ill, I have a condition which needs to be managed’.