134. Dance and Donate

Dance and donate to Cure Parkinson’s with Souled Out Summer.

On Saturday 27 March at 4.45pm The Intermission with Andy and Julie will be ‘on virtual tour’, opening Souled out Summer on Facebook live.  

Tune in via the Facebook page at 4.45pm to hear a bit of banter and some Parkinality Poetry.  Then from 5pm the DJs from Souled Out Summer will be unleashed, spinning vintage vinyl, from the 50s, 60s, 70s.

No need to book a taxi or babysitter – this is a virtual event and a fundraiser for Cure Parkinson’s.  So why don’t you click the just giving link and donate whilst you dance in the dining room, listen in the living room, pogo in the parlour.  All money raised will go to Cure Parkinson’s to fund their vital work to speed a cure for this awful disease. 

Diagnosed with Young Onset Parkinson’s Disease at 44, Julie has lived with the disease for 8 years, and her partner Andy, diagnosed 49, has lived with PD for 15 years.   It is a chronic degenerative condition and currently there is no cure.  During lockdown charitable donations have been lost through the cancellation of so many events they desperately need our support.  

https://www.justgiving.com/fundraising/sos21-spinoutspecial

1. Crohns Zone

Pull up a stool (not that kind, that kind)

Why did I ignore my body.? Why did I ignore the whispering? Why do flamingos bend their knees round the wrong way?

Welcome to the new zone … The Crohns zone. It has demanded it’s own area, it can no longer be ignored.

My body started proding me properly in February 2019. It had been whispering for a while. Silent farts, noisey wind reflux, bloating, side pain, weight, loss and to be Frank I didn’t actually realise how constipated I was until I wasn’t.

It was in February 2019 when on holiday that I suddenly realised I hadn’t stooled for around two weeks. Increasing pain in my right side, a visit to the doctors and appendicitis suspected. Told to go straight to A&E.

To cut the twaddle and hazy memory … I will bullet point the year.

  • Five stays in hospital
  • One by ambulance
  • Right side shouting and whispering … anyone poked it and I would hit the roof.
  • bloating
  • constipation
  • pain
  • steroids causing hallucination as they (unhelpfully) reacted with my Parkinson’s drugs.
  • Blood tests and stool tests always gave bad results – apparently ‘inflammation levels’ always all over the place.

Today March 2021 – big wake up call. Been ramped up to severe and done some research. I must accept that Crohns is a proper ‘chronic condition’ which must be treated.

Soooo … this week I am being given injections fortnightly to try and get me in remission.

Scared and worried about injecting

Scared and worried about prognosis

with Parknson’s I honestly have never thought ‘why me’. But Crohns has sent me rantloopy.

Two chronic conditions it would be a joke if it wasn’t so flamming awful.

The symptoms dovetail in some kind of evil carpentry joint…

For example

Crohns causes toilet urgency at random times, Parkinson’s causes inability to walk at random times.

Crohns is affected by diet, need to eat often Parkinson’s medication interacts with food, need to eat at certain times and not too near meds… which I am now taking every 2 hours.

Apologies to the apostrophe police. Just noticed Crohn’s and Parkinson’s are both apostrophe S. Is that because they both possessively own me.

And now for the positive humorous twist on the situation ….

Toddle-loo

133. ‘Un’

Undignified uninvited unfair unfathomable unimaginative unfortunate uncomfortable undescribable unreasonable just flaming unfair unhelpful ungainly

This is getting ridiculous

Off and on like a switch, a proper switch, not a faffy dimmer switch. Lockdown, to be honest, is becoming some sort of mini hell, and I don’t mean a Menopausal Italian Job – although I would like to blow the flamming doors off and bound meaningfully back to Top Shop … just remembered as if life couldn’t get much worse – no proper Top Shops anymore – I’ll have to go elsewhere for my Pret, Blouse and Tattoo.

And breathe

Really finding it difficult – and with all due respect – and this is not a very pc thing to say … it is ‘not the same for everyone’.

End of speat