okay daylight hours on a Monday and I shouldn’t be posting
I don’t usually post in this state because one it is very slow going typing and could take me a while and also I am not feeling positive
this is a low time … it isn’t night time it is daytime. but it Is completely rubbish no one can understand what this feels like. to be completely rubbish in the cold light of day , people are about now which is good but then oh I don’ know what I am waffling about. people I am talking people without pd are going about their daily business and I can but I can’t. I don’t know what is going to happen from one minute to the next.
atm when I am switched on I actually feel veery normal, swishing about and being a speed walker round the supermarkets and almost annoying swishy person again. I feel invincible. amd wonderful
that makes the switching off even more horrible I have had a glimpse of normality I like it and I want it to always be like that. I am sorry for posting this but then you are subscribing for this and I did warn you at 5 years it was going to get worse. now seven years and the extremes are awful oneminute frozen my fingers are just about moving very slowly thank goodness for auto correct. but I was totally dyskenesic any minute and well I could on,
I know I will re read this and go flip I shouldn’t have sent this.
and I want no sympathy that is not what this is about . awareness of hidden invisible pd and other conditions that are invisible to others. everyone has something going on. please cut people slack (does that come from fabric cutters) when they are a bit off you have no idea what is going on inside.
One hundred had to be a good post … a poignant post, a meaningful missive, not pathetic prattle.
I’m on the radio … A new radio station organised and presented by people with Parkinson’s (but you don’t have to have it to listen to it) called Shaky Radio is available to listen to on the internet. Full of really smashing stuff including music, meditation, medication, musings and mice.
So find it at www.shakyradio.co.uk I am on at 5pm today (Wednesday 9 October 2019, in case for you today is Thursday 28th November 2019191).
I have just realised I have actually done more than 100 posts if you include my new sections, numbered separately … (I won’t be doing that as it will spoil it for me). So forget I’ve said this, but you probably wouldn’t have notice unless you are a VOP**
flipping heck now can’t type properly using one finger, don’t know how to do dictation on blog
this is where pd is really getting to me communication wise.
I have lots to say but can’t write and I mean its illegible. in the same way walking goes writing has started to disappear, I can’t hold a pen atm I can’t use my left hand thank goodness for auto correct
and I have had a magnificent evening . performed at an amazing charity night raising money for adults with difficulties.. I sold books ,,, gave donation to their charity and raised money for cpt as well.
my body is now giving in its exhausted but my mind is buzzing with ideas
soooooo flipping frustrating
poetry went down well ,,,, the wiseish man sang ,,,,
money raised for two causes and more awareness spread
Okay that bit over and done with it lets GOWI (Get On With It – please keep up)
Me, okay sorry ‘my patient tech guy’. has been busy earning chocolate working on and revamping the blog. I know it’s still purple, revamping, not rebuilding.
Have a scoot round the new sections and links (although do exercise caution when clicking links, I cannot be responsible for careless clicking, broken links, changed sites or the information on other peoples sites ) and les soon.
ps excuse the sometimes wonky typing or changes in font – why doesn’t it do it when you write it? – pd is getting in the way more and more – yawn
Based on the premise that there is ‘more than one victim’ after announcing life changing news, this play has relevance for any event. This play is just a small part of a larger project coming soon … watch this space.