Living with Early Onset Parkinson’s : A Personal Blog

‘My Positive Parkinality’ is a predominantly positive personal blog about living with early onset Parkinson’s.

Beginning this blog with a made up word in the title may not be the most straightforward start, but bear with me.  As this is not a ‘Who Dunnit’, I don’t expect you to read for 900 pages trying to unravel the purpose of the blog.  So I’ll pre-empt a few questions :

Parkinality (pa:kin-al-i-tee)

  • Parkin(son’s) (person)ality
  • a ‘blend’ word, a word formed from parts of two or more words – yes, I made this word up.
  • i.e. Parkinson’s affects every single part of every single day.  It has become a new part of my personality.  Hence Parkinality.

What does the title mean :

  • My: I was diagnosed with early onset Parkinson’s Disease at the age of 44
  • Positive: I am as positive and pro-active as I can be, celebrating what I can do.
  • Parkinality : Parkinson’s has become a new part of my personality
  • *predominantly : I am predominantly positive, however I make no apologies for being honest when things are bad.

Why am I putting my head above the parapet and writing :

  • To raise awareness about early onset Parkinson’s
  • To let others living with Parkinson’s know they are not alone, dealing with seemingly random symptoms.   It can be very isolating.
  • Sharing tips and coping strategies.
  • To keep a journal as I believe it will help me (and as soon as it doesn’t I will stop).

Is it going to be sad?

  • No (well mostly no, after all it is a (currently) incurable degenerative neurological condition).

How to navigate the site :

‘About’  – contains three pages explaining why I am writing this blog.

‘Latest Blog Posts’ – this lists the latest blog posts(!)

‘Archived Blog Posts’ – in brackets are the number of posts in each month.  So if you would like to start reading from the beginning, click on ‘January 2017’ and you will find the first post ‘Diagnosis Day’, the blogs are numbered.

‘Email Subscription’ – if you like what you read,  fill in your details and you will be emailed when a post is put up.  You can unsubscribe at any time.

Not so small print :

This is a personal blog about living with early onset Parkinson’s from my perspective.  Everyone experiences symptoms/progression differently.  There is no right or wrong way to deal with this.   I am (obviously) not medically trained, so please don’t change any medications, or try anything new, without first speaking to a medical professional.