‘My Positive Parkinality’ is a predominantly positive personal blog about living with early onset Parkinson’s.
Beginning this blog with a made up word in the title may not be the most straightforward start, but bear with me. As this is not a ‘Who Dunnit’, I don’t expect you to read for 900 pages trying to unravel the purpose of the blog. So I’ll pre-empt a few questions :
- Parkin(son’s) (person)ality
- a ‘blend’ word formed from parts of two or more words – I made this word up.
- Parkinson’s affects every part of every day, in effect a new part of my personality.
What does the title mean :
- My: I was diagnosed with early onset Parkinson’s Disease at the age of 44
- Positive: I am as positive and pro-active as I can be, celebrating what I can do.
- Parkinality : Parkinson’s has become a new part of my personality
- *predominantly : I am predominantly positive
Why am I putting my head above the parapet and writing :
- To raise awareness about early onset Parkinson’s
- To let others living with Parkinson’s know they are not alone
- Sharing tips and coping strategies.
- To keep a journal as I believe it will help me (and as soon as it doesn’t I will stop)
Is it going to be sad?
- No (well mostly no, after all it is a (currently) incurable degenerative neurological condition).
‘Archived Blog Posts’ – to start from the beginning, click on ‘January 2017’ the first post ‘Diagnosis Day’, the blogs are numbered.
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End of 2017 : asked to write a fortnightly column in the local paper, entitled Parkinality – crickey
Not so small print : This is a personal blog, everyone experiences symptoms/progression differently. I am (obviously) not medically trained, so please don’t change any medications/regimes without first speaking to a medical professional.